In creating awareness for our fundraising campaign I’ve been researching stories, inspiration and news to up date our supporters with. As a parent of a one year old with cystic fibrosis this has been incredibly hard. I see pictures and stories of bonny, healthy looking babies, people climbing Mount Everest, running marathons with CF. Getting married, travelling the world. Equally I see stories of lung transplants, premature deaths, illness and campaigning for treatments deserved. In the early days of Minty’s diagnosis I could not read or look at anything to do with CF. I was too traumatised and worried for her future. Now I have developed a shell that enables me to read these things. I know other parents with newly diagnosed children do the same. Every now and then the shell cracks and you fill with panic. What if…. what if she needs a lung transplant, what if this time she needs IVs, what if I’m not doing the physio correctly, what if she catches this bug or that bug. I’ve also developed a feeling of hope for the future, a hope that is driving my wish for a cure. I want to see her marry (if she wishes!), achieve all her goals and live a happy and fulfilling life. I am aware that her future is uncertain and we try to live each day with joy and happiness. I am grateful for the support we have received in our fundraising journey. The many people with CF and their families I have met on social media. We are like a big extended family in someways. Thank you. If you are a parent reading this and you have a child just diagnosed, know that there are hundreds of people there to support you. Things will be OK. That’s it for my emotional outburst this morning! Have a good day. May if CF Awareness Month in the US. What if… everything turns out OK. What if… a drug is announced that will help Minty. What if… a cure is found!