From another CF parent. Meet the lovely Eli #cfawareness
I received an e-mail from the maker of a medicine for RSV, a severe type of cold, that RSV season is coming to a close.
I don’t think I ever wrapped up my fight with insurance on this issue here. Sorry!
Consider this post, ‘Fighting with insurance, part 3.
Eli never got the medicine for RSV. RSV would put his lungs at risk for serious infection. ’cause, ya know, he’s got a deadly disease that steals lung function over time. So let’s NOT give it to him, ’cause that makes sense! He also never got RSV. We washed our hands this winter until our knuckles bled.
Doesn’t matter that he never got RSV – the issue was a thorn in my side for five months.
I met a woman in Washington DC whose 1-year-old was also denied Synagis. Sweet Sutton Grace did develop pneumonia after contracting RSV…
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