No Spoonfuls of Sugar Here

Having a positive attitude to taking her cystic fibrosis medicines helps my 23 month old take her morning medicines with ease. Recently she’s decided she wants to do them herself. Took a long time for her to get to this stage. Many of these, especially flucloxacillin, taste not so great. Next steps will be her own Creon and much more. Normalising this with positive language. No vile, yucky stuff here. We love CF meds to keep her healthy!

Home from the Hospital

So delighted to bring Minty home from her hospital stay, a few days earlier than expected. Down to failed IV access and difficulty getting lines into her chubby feet, arms and hands. Her cough resolved after taking longer we would have liked. Home on high dose oral antibiotics (which she really doesn’t like taking) and extra physiotherapy. I worry slightly about her being home and not getting the full dose of IV antibiotics. But overall, absolutely ecstatic that she can sleep in her own bed, rough and tumble with her brother and get her routine back to normal. She did brilliantly well in hospital, fared much better than we did! I am now left dreading the time until her next hospital admission . One week, one year, three years?? Who knows.

The hospital stay was a bit of an altered reality. We came home to try and resume normal life again. We had our first family meal last night, all six of us sat around the table as usual. Chat was around exams, Bieber, friends, food and our upcoming family holiday.

I leave absolutely determined again to raise funds for research and support for those with CF. Sunday is our skydive – yikes!! This is our last few days of fundraising, so if you’ve been meaning to give, never given to charity before or want to support Cystic Fibrosis Trust the time is now! We cannot wait too long for a cure. I cannot bear the unknown future for Minty. I want her to have a normal life. A life that her cheeky little face and snuggliness deserves. Donate here. Thank you so so much for your support and kindness. That’s it for now.

Back to work tomorrow.

P.S. If anyone has any tips for surviving hospital stays and remaining positive, do please share!

 

'Chest is clear, with equal air entry throughout. No added sounds'.

‘Chest is clear, with equal air entry throughout. No added sounds’.

The Stool of Power

20130522-080442.jpg

It has been found again despite my attempt at hiding it. Note sharp knife and ceramic hob within easy reach. Someone please remind me how long this terrible twos business lasts?!

This morning – I want the red bowl. No orange. No red. No orange. *Screams*

Banish this Stool of Power/Mischief/Danger forever.

Toddlers & Teens: The Twilight Times

Sometimes I look at my children and I think , “Bloody hell, I’m their mother. I’ve no idea what I’m doing.” Truly, each day comes and goes and I hope I’ve just done my best. I hope I’ve given them some happy times, good food, love, hugs and not shouted too much. But parenting brings such new challenges every day. I have to constant re-evaluate myself, adapt and proceed with that unknown outcome of producing sane adult children. I am in envious awe of you parents with grown up, well adjusted adult children. You deserve to sit back and feel smug at your success. I’ve no idea how you got there, but you did.

As a mum of four I’m often asked, “how do you do it?” Honestly, I’ve no idea. My four are in groups of two separated by ten years! That makes quite a difference really. In some ways it makes it easier, but at the moment I am going through the challenges of having both a toddler and teens. My delightful little three month old daughter with cystic fibrosis (another story) easily just fits into the bigger picture. But step into my house between the hours of 4pm and 8pm and you will descend into another world, a twilight zone. That is when you will see my most frazzled. It begins post toddler nap, after which he always has a meltdown, and he is then stuffed into a car to pick up his older sisters from school. He likes to wear his dressing gown and space monkey pyjamas at all times at the moment. They sometimes stick to his chubby little body with jam, sand and whatever else he’s been into that day. If you see me in the bank with such a child, do forgive me and don’t judge, for its easier to take him like that than face another tantrum. Pick your battles I say.

The school run complete we return home for toddler supper that coincides with infant cluster breast feed (between 5 and 7.30pm). This also happens to occur at teen snack time, of which they always ask me “What can I eat?” and evening meal preparation. Really evening meal overlaps with toddler and baby bath and bedtime. I can stick the rice on and run upstairs to bath one, while breastfeeding the other or the baby has to wait screaming until I can get to her. The act of producing a home cooked meal at this time I consider a small miracle. In a word – it’s CHAOS! Chaos hopefully filled with laughter, tears, frustration and lots of love. Please forgive me that if I answer the phone during that time or you ask me a question, I’ve no idea how I will respond, I may be short with you. This is far more challenging to me than many of my days struggling with the demands of being a junior doctor.

Rather apt, trying to balance the see saw of ages.

Rather apt, trying to balance the see saw of ages.

Now it has struck me now that I am facing very similar challenges in parenting a toddler and a teen. I have my lovely 12 year old, she’s almost 13, so for sake of argument let’s call her a teen. And, my oldest is 14, soon to be 15 (read her excellent blog here) has already traversed some difficult stops on the teen journey, but at the moment is on a nice smooth flat section of the teen rollercoaster. My toddler pushes me to the limit, he’s seeking his boundaries. “I WANT BISCUIT. I WANT CHOC-CA-LAT” he has been known to scream at 5.15am when he wants breakfast. “No, darling, we don’t eat biscuits or chocolate for breakfast” is what I try and say. Really, I want to scream “FOR F~@$’s sake WE DON’T EAT THAT FOR BREAKFAST. I AM IN CHARGE HERE, YOU WILL DO AS I SAY!”

Whatever, we parents have been given the tough job of not causing emotional damage and setting the example. Crikey, we must be perfect. But I can tell you what, my kids have unfortunately heard me use some very bad words, shout and scream and throw my own tantrums. Now, never mess with a MUM TANTRUM as they can far out-do any toddler or teen. Now my toddler has found a new object of joy. An object of mischief. It’s his Stool of Power. This red plastic stool has been introduced as my latest parenting challenge. It came with an electronic drum kit, which I have hidden as it has only one volume – extremely loud. (Manufacturers, I’m sure you don’t want your drum kit implicated in some parent-child altercation, so please put a bloody volume control on it.) Now the Stool of Power goes everywhere with him. It has enabled him to reach into drawers containing matches, find sharp knives, pull down books, pick up the kettle using no handles just the bare metal (thankfully it was cold) and other such mischief. I need eyes in the back of my head to see where and what he is using the stool for. Rationalising that touching the ceramic hob after I’ve made a stir fry is going to hurt doesn’t seem to work. I am forever providing safe limits to his testing of boundaries. If you see me in the Emergency Department (where I may well run into my husband as he’s there more than at home at the moment) with a toddler in pyjamas, screaming baby and grumpy teen, know that I did try, honestly I did try.

Now where can I begin with the joys of parenting teens…. My oldest daughter’s recent blog post of the challenges of living with a Belieber will give you some insight. I find myself facing different boundary challenges. What is acceptable speak between mother and child, when to come to the table for supper, how I cannot buy yet another thing and so on and so on. Now, I come from the school of frank parenting. I don’t like the idea of my girls not being equipped with the things I didn’t know. So we have frank chats about:

  1. condoms (and how they aren’t 100% reliable)
  2. sexuality
  3. trimming pubic hairs
  4. waxing hair on the upper lip
  5. how never to get a credit card (if you do make the limit tiny)
  6. how to use a debit card
  7. not to go to there area as that’s where the doggers go (“What are doggers?”. We’ll come back to that one.)
  8. to save for a pension
  9. to save for a deposit on a house
  10. how to make a delicious pastry

I always have my ‘lectures’, hopefully some of it will go in. I just want them to be loved and grow up and be happy. Hopefully, not get a job as a pole dancer or doctor (but I will love you even if you do). But teens.. they really try me to the limits of my patience. It’s not that long ago that I remember the teen years, but believe me I do know that I didn’t know a lot of stuff. So, I SPEAK FROM WISDOM and EXPERIENCE my lovelies. I find the teens so often depicted on TV and the movies so obnoxious, the parent’s so dysfunctional and they seem to talk so rudely to each other. I hope this isn’t what my girls think is normal teenage behaviour. I hate the sexualised music videos, the constant depiction of seeking love and losing your virginity. I find myself asking for things to be turned off and sounding like my own mother! Our latest attempt to blend our family into one functioning unit, complete with happy memories, is to embark upon camping trips. This has met with considerable teen groans. Disdain even, as my embarrassing ‘Mum-Mobile’ arrives to pick them up from school. A seven-seater enormous ‘car’ complete with roof box. I do suggest that they may walk. We must be mad to consider camping with teens, a baby with CF and a toddler. But I’ve got a spread sheet checklist for all eventualities – slightly embarrassing, but organisation is key to everything.

Vehicle of Embarrassment

Vehicle of Embarrassment

Must go as toddler now has a heavy metal object and is swinging it over the head of little baby sleeping peacefully. Oh, she is saved by him trying to put Borat into the DVD player. Which shall I retrieve first? All this and it’s not even 9am. But I’m filled with this feeling that this time is short. My girls are growing older and I can count the family Christmas’s left with them living at home on one hand. My youngest may not even remember living with three other siblings. I’m trying to capture memories for you in video and photos.

But let’s end on this. I love my kids, I love every one of them with their differing personalities and smells. I’ve been sniffing the tops of their heads and smoothing my chin on their soft hair since minutes after birth. I am your mummy and I hope I am doing OK. Happy Mother’s Day to my friends in America.